In memory of our baby Kyle: Oct 24, 2011 - Nov 8, 2011. We had 15 days with him. This is a summary of the first 7 days. As many people reading this know, I was pregnant with a baby boy affected with a severe mutation of Ornithine Transcarbamylase Deficiency, which means that he can't metabolize protein properly. Protein gets changed into ammonia, but it doesn't get past that point in affected children. The ammonia builds up, causing potential brain damage, and eventually causing the organs to shut down. We were going to do medical treatment to be followed by a liver transplant. We weren't convinced we would get to the point of transplant, because the treatment would be difficult to manage. But we were willing to try. We were doing it day by day. We were going to try, and if he made it, we would go buy everything that was needed. I was due Nov 14, or Nov 11 based on ultrasound. I've had two previous full term pregnancies. My daughter was born at 10 days ove
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